Chronic Pain and Difficult Decisions

Chronic pain presents a distinct set of challenges. In addition to the physical and mental toll of living with chronic pain, facing difficult decisions (e.g., when to seek help, what treatments to try, who to trust with medical information, how to maintain a balanced life, etc.) is common. The decision-making process can be overwhelming, especially when living with chronic pain.

When to seek help for new or worsening symptoms

Levels of chronic pain often fluctuate and new or worsening symptoms can arise. Getting proper treatment is essential for quality of life, but sharing new or worsening symptoms with a health care provider can be intimidating. Not only do individuals with chronic pain cope with physical symptoms on a daily basis, but they also have to deal with skepticism from others, especially if their chronic pain is “invisible.”

Unfortunately, some health care providers may misjudge individuals with chronic pain, especially women. Health concerns may be dismissed or misinterpreted as exaggerations due to frequent appointments or multiple health concerns. The fear of being labeled a “hypochondriac” can prevent individuals with chronic pain from discussing worsening pain or new symptoms with their health care provider. This can make it difficult to decide whether seeking help for a new symptom or worsening pain is a good idea, as it may negatively affect their relationship with their provider.

A medical provider should never dismiss concerns; this can lead to a lack of adequate care and can impact physical and mental wellbeing. An individual’s chronic pain should be acknowledged and validated. If concerns are dismissed by a health care provider, asking for a referral to a medical professional specially trained in pain management, such as a physiatrist (physical medicine and rehabilitation physician), is a good first step in receiving proper care. It is important for those with chronic illness to listen to their bodies and feel comfortable sharing any new or worsening symptoms with a trusted health care provider.

Who to tell

It is often difficult for others to understand the challenges of living with chronic pain. Even the most well-intentioned family and friends may need guidance to fully grasp the daily struggles associated with chronic pain.

Choosing whom to trust with health information is a delicate decision. It is normal for individuals with chronic pain to want to share this part of their lives with friends and coworkers; however, the possibility of judgment or being treated differently is a real concern. Taking time to form trusted relationships before sharing too much information is typically the best choice.

What treatments to try

There are a number of alternative treatments available for chronic pain. Some alternative treatments are backed by research studies and supportive evidence; unfortunately, some alternative treatments are scams targeted toward individuals who are desperate for a cure. Working with a trusted health care provider to determine what treatments are worth a try is a good idea. Ultimately, the decision falls onto the individual and what cost they are willing to pay (monetarily or health-wise) for a potential treatment.

Whether to rest or push

In the past, the main treatment for chronic pain was rest. While rest does play an important role in chronic pain treatment, research shows that maintaining a certain level of physical activity is beneficial. It may take some time to find a good balance of rest and activity.

Daily decisions about what activities to engage in, what mobility aids to use, and other choices can impact pain levels. Both too much activity and too little activity can increase pain levels, making it a difficult balance to achieve. The key is to listen to the body’s cues, identify patterns of increased pain, and adjust activities accordingly.

Whether to keep fighting or accept fate

While it’s natural to keep fighting, it can be exhausting. On the other hand, accepting chronic pain can feel like giving up. Combining elements of both approaches creates a healthy balance. Acceptance plays an important role in effective chronic pain treatment, but it's also crucial to keep seeking treatment and accessing the best medical care possible.

Additional source: Psychology Today